Roid Rage

Grace has one more day of steroids for this phase, thank goodness. Steroids make sweet, playful little girls into emotional, mean, hungry little girls. This week hasn't been as bad as it was when she was first on steroids back in December, but it is definitely similar. Her whole day is focused on food. From the moment she wakes up, she already has her whole day planned out as far as what she is going to eat. Heaven forbid that we would change it up at all either. She could literally eat all day if we let her. Today, when we got home from a walk at 10:30 am, she was so upset because she wanted lunch and wanted me to say that it was almost lunch time. She refused to have a snack, but was very disappointed that it wasn't lunch time yet. She just laid on the couch and kept asking what time it was. At 11:30, I finally said, "Ok, you can have some lunch now." She got so excited and said, "See! It was almost lunch time! I told you so!" I just had to laugh, what a goof.

Weary

It's amazing what a difference a week can make. A week ago, I was feeling so sad and down about our situation with Grace. It had been going on for a few weeks where I was feeling very weary and defeated. It gradually was getting worse and I eventually reached out to some close friends and asked for prayer. I was trying to dig deeper into God's Word and pray more as well, but felt like I wasn't getting anywhere. I think a lot of it had to do with starting this current phase of treatment. Since the beginning, we knew about this phase and how hard it was going to be. It's hard to be optimistic about it, when you've heard so many bad things about it.
I'm so happy that this week, I am feeling so much better. I can't pinpoint it to one particular reason, probably lots of prayer. I am feeling more like myself and ready to finish up this last phase of intense chemo strong. Now that we're a few more weeks into it, it doesn't seem quite as hard. It will most likely get a lot harder as her numbers begin to trend downward.
The steroids artificially inflate her ANC, so we really don't know where she's at right now. We have to be on the lookout these next few months for any fevers, lethargy or any change in her normal behavior, because it could warrant a trip to the hospital.